CADASIL ASSOCIATION © 2014

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

CADASIL Association

 

      Links, research, support, doctor list

      We are committed to the cure!

      Embrace, the bi-monthly newsletter of the CADASIL Association, is actively seeking personal stories, questions for our doctor, news and events, fundraising ideas, creative writing pieces, doctor profiles, and memorials.

      CADASIL is often mis-diagnosed as MS (Multiple Sclerosis). Check out our collection of information about this rare genetic disease from other websites and sources. View our doctor directory. Please note: CADASIL Association is not responsible for information found on external sites.

      Help the CADASIL Association meet goals for our current and future patients by donating to our non-profit 501(c)(3) organization. One-time donations and recurring donations/subscriptions are appreciated.

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      CADASIL Association

      P. O. Box 124

      Helmetta, NJ 08828

       

      307-215-9840

       

      info@cadasilassociation.org

       

      on Facebook

       

      WHAT IS CADASIL?

       

      CADASIL is an inherited disease often misdiagnosed as MS or other neurological disorders.

       

      CADASIL is considered a serious rare disease that is underdiagnosed.

       

      CADASIL causes multiple strokes and TIAs in adults, even young adults, often without cardiovascular factors.

       

      CADASIL symptoms result from damage of small blood vessels, especially those within the brain.

       

      CADASIL patients have symptoms of seizures, migraines, dizziness and balance problems, vision disturbances, fatigue, and mood disorders that include anxiety, depression, and apathy.

       

       

      CADASIL is an acronym for:

       

      Cerebral - relating to the brain

       

      Autosomal Dominant - a form of inheritance in which one copy of am abnormal gene is sufficient for the development of a disorder

       

      Arteriopathy - disease of the small arteries (blood vessels that carry blood away from the heart)

       

      with Subcortical - relating to a specific area of the deep brain that is involved in higher functioning (voluntary movements, reasoning, memory)

       

      Infarcts - tissue loss in the brain caused by lack of oxygen to the brain, which occurs when blood flow in the small arteries is blocked or abnormal

       

      and Leukoencephalopathy - destruction of the myelin (an oily substance that covers and protects nerve fibers in the central nervous system)

       

       

      CADASIL Association wishes to acknowledge the help of:

       

      Association member Robert Davis for his assistance with this website

       

      Association member Karl Stumpf for his creative assistance with graphic art used by the association

       

      CADASIL Association Annual General Membership and Public Meeting

      Join us on Thursday, April 24, 2014 at 7:30pm EST/USA, as CADASIL Association holds our annual public meeting via conference call to inform members and other interested persons of our recent accomplishments, activities, and upcoming goals.

       

      Questions, comments, and suggestions are always welcomed. They can be emailed to info@cadasilassociation.org prior to the meeting. Participants will be muted during the meeting. At the end, the lines will be open for questions, comments, and suggestions.

       

      Call: 1-605-475-4000 and enter access code 772160# when prompted. You will hear how many other people are already on the call, and then you will announce yourself by giving your name. PLEASE NOTE THAT THIS IS NOT A FREE CALL. If you have a cell or land line with unlimited minutes, you will want to use that. If you are outside of the USA, we understand that time zones and international telephone fees will likely keep you from joining us. This call will be recorded. We will email minutes from the meeting to all CADASIL Association members.

       

      If you cannot attend the meeting but wish to receive the minutes, please join the association at our Join Us page and they will be emailed to you.

      Cadasil Association