cureCADASIL ASSOCIATION © 2012-2016

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

CureCADASIL/CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

NEWS & EVENTS

Our 2013 Boston CADASIL Conference was held on June 27-29.

Learn more about the conference here.

We are working for YOU! Representatives of cureCADASIL Association attend World Rare Disease Day events in Washington, DC each year.  View a summary of our activities here.

Read and Download issues of EMBRACE, the newsletter of cureCADASIL Association published several times a year. We are always seeking personal stories from patients and their families, questions for our doctor, news and events, fundraising ideas, creative writing pieces, doctor profiles, memorials, and more. 

EMBRACE

Newsletter

YEARLY

EVENTS

PAST EVENTS

CADASIL Awareness Day is November 16th, but you can help to get the word out about CADASIL any day of the year! Learn more here.

Join us in representing CADASIL during Rare Disease Day activities held the last week of February every year.

http://rareadvocates.org/rdw

cureCADASIL Association

 

10 Schalks Crossing Road

 

Suite 501A-133

 

Plainsboro, NJ  08536

 

 

Phone messages: 307-215-9840

 

info@cadasilassociation.org

February 2015 - Janice Ragazzo attended Rare Disease Week in Washington DC and was able to make progress on cureCADASIL Association's goal of getting an ICD10 code for CADASIL.  Here is a photo from the event and if you look at the bottom right you will see Janice with a cureCADASIL sign!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

February 27, 2015 - Rare Disease Celebration was held at Saint Peter's University Hospital.  cureCADASIL Association was represented with and information table. In addition, our President Anne was asked to help with next year's Rare Disease Day Celebration.

 

 

March 16, 2015 -  New Jersey's Statehouse event was attended by several cureCADASIL Trustee's and members to spread awareness of CADASIL

 

April 18 to 25, 2015 - The American Academy of Neurology's 67th Annual Meeting was held at the Walter E. Washington Convention Center in Washington, DC. from April 18 to 25, 2015. Three cureCADASIL Trustees attended and hosted a CADASIL exhibit booth.

 

July 15-18th - The United Leukodystrophy Foundation Conference in Omaha, Nebraska was attended by our president, several Trustee's and members of cureCADASIL.  Much learning and support was gained at this event.