cureCADASIL ASSOCIATION © 2012-2016

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

CureCADASIL/CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

Take the intiative! Spend time in your community spreading awareness and understanding of CADASIL. Focus on local doctors, emergency response personnel, your friends, neighbors and others in your community. Spread the word. The more people in your community know about CADASIL, the more likely they are to help. And every person that steps forward is another voice to support us as we work to find a cure.

 

Below are some ideas and suggestions to get involved and get the word out about CADASIL! You can use these resources at any time, not just in November!

 

Click HERE to view and download a Press Release for CADASIL Awareness Day that can be submitted to your local media (newspapers and television).  

 

Click HERE to view and download a Letter about CADASIL Awareness Day that can be shared with local, state, and national officials. This letter can be edited and personalized.  

 

Click HERE to view and download a Proclamation for CADASIL Awareness Day that can be shared with local, state, and national officials. This letter can be personalized.  

 

Click HERE to view and download a tri-fold color brochure of CADASIL facts, information about CADASIL Association, and ways people can help. 

 

Click HERE to view and download a color poster on regular 8-1/2 x 11 paper to post in your local area for CADASIL Awareness.  

 

Click HERE to view and download a letter to send to the Social Security Administration (USA only) asking for CADASIL to be added to the Compassionate Allowance List. Inclusion on this list can help CADASIL patients who are applying for disability. This letter is in Word format, so it can be edited and personalized as you wish.  

 

Use the links below to find and contact a US senator or representative and ask them to vote for legislation that helps rare disease research and funding:

 

http://www.senate.gov/general/contact_information/senators_cfm.cfm

 

http://www.house.gov/representatives/find/

 

Order CADASIL Association items such as two-sided business cards full of info, T-shirts, banners, magnets, etc from Vistaprint by following these directions: Go to vistaprint.com and log in with the email: jandym98@charter.net and the password: cadasil (all lower case). That will take you to Janet Mills' account, where you can click on "See your full portfolio" next to "My Portfolio." You can order any of the items on those pages (there are many choices, but the yellow association logo is the new one), then use your name and mailing address and credit card info when you are ready to check out. Just be sure you do not save your credit card info on the site.

 

Any questions, contact Janet Mills at: jmills@cadasilassociation.org

 

Raise Awareness

Make Every Day CADASIL Awareness Day

Petition for a Course in Rare Diseases

 

The CADASIL Association, representing all rare diseases, would like to invite you to join us in our campaign. We plan to present this petition to The Institutes of Medicine and The Association of American Medical Colleges to show that the public supports adding a course in rare diseases to the medical school curriculum. Why? Because a course in rare diseases would provide new doctors with increased knowledge and awareness, ultimately shortening the time for a more accurate diagnosis and effective treatment.

 

 

 

Please sign on to this petition in support of our effort. Every name we can add to our list of supporters strengthens our cause and helps the millions of Americans suffering from a rare disease. Your pledge of support to this cause could ultimately help save many lives.

cureCADASIL Association

 

10 Schalks Crossing Road

 

Suite 501A-133

 

Plainsboro, NJ  08536

 

 

Phone messages: 307-215-9840

 

info@cadasilassociation.org