cureCADASIL ASSOCIATION © 2012-2016

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

CureCADASIL/CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

Support Groups

At this time, our most active groups are on Facebook.

Please read the information for each group below

to decide which one(s) are best for you.

 

 

CADASIL Support on Facebook: https://www.facebook.com/groups/cadasilsupport/ 

Open, public group for anyone interested in learning more about CADASIL for any reason.

People outside the group can see the members and posts.

To join, go to the page and click "Join Group."

Anyone in the group can invite and add members.

 

CADASIL-ians on Facebook: https://www.facebook.com/groups/239831366038141/ 

Closed group for anyone touched by CADASIL: patients, families, friends, caregivers, medical professionals, students, etc.

People outside the group can see the members in it but cannot see posts unless they are also a member.

To join, go to the page and click "Join Group."

 

CADASIL Patients United on Facebook: Must contact Heather Chepko-Albertson for membership -- Email: vchepko@gmail.com 

Private ("Secret") group for diagnosed CADASIL patients only. Please provide the month and year of your clinical diagnosis when emailing to join.

No one outside the group can see this page, your membership status, or your posts.

If you feel you may have CADASIL but do not yet have a medical diagnosis of it, please join CADASIL Support, CADASIL-ians, or CADASIL "At Risk."

 

We Are CADASIL Connected on Facebook: https://www.facebook.com/groups/291757634200327 

Closed group for friends, family, and caregivers of CADASIL patients.

NO diagnosed patients are allowed in this group so that members can talk freely about their loved ones with the condition.

To join, go to the page and click "Join Group."

 

CADASIL "At-Risk" Support Group on Facebook:

Closed group for anyone who has a biological family member with a CADASIL diagnosis but has not yet been tested personally.

NO diagnosed patients are allowed in this group so that members can talk freely about their options and opinions regarding testing...or not testing.

To join, go to the page and click "Join Group."

 

CADASIL Association page on Facebook: https://www.facebook.com/CADASIL.Association    --->  Please "Like" us!

 

 

Other groups not on Facebook:

 

MD Junction CADASIL Group: http://www.mdjunction.com/cadasil

 

MD Junction CADASIL Forum: http://www.mdjunction.com/forums/cadasil-discussions

 

PatientsLikeMe CADASIL page:

http://www.patientslikeme.com/conditions/1323-cerebral-autosomal-dominant-arteriopathy-with-subcortical-infarcts-and-leukoencephalopathy-syndrome

 

Reddit CADASIL page: http://www.reddit.com/r/CADASIL/search?q=CADASIL&sort=relevance&restrict_sr=on&t=all

 

Frontal Temporal Dementia (FTD) Support Forum: http://ftdsupportforum.com/

cureCADASIL Association

 

10 Schalks Crossing Road

 

Suite 501A-133

 

Plainsboro, NJ  08536

 

 

Phone messages: 307-215-9840

 

info@cadasilassociation.org